As part of the Rare Disease Day we created the ItineRARI event, a fundraising initiative to support our projects of listening, support and training of SCN2A and SCN8A families who share conditions such as epileptic encephalopia, psycho-motor retardation and autism spectrum disorders.
We thank for the collaboration the Comue of Padua, our President Stefania Dantone and the tourist guides of Padua who contributed to the organization of the initiative and the realization of the tours!
Rare, but no longer alone!
#scn2aitaliafamiglieinrete
#autismo
#epilessierare
#RareDiseaseDay
#malattierare
#disabilità
#rarimanonpiusoli